Good news came today in the form of a call from our Developmental Peds Dr. Samantha's blood work came back and her nutritional levels are good, her chromosome tests are normal (showing no precursors for Rhett's syndrome), and the ONLY thing he saw as a concern was her iron level. Normal is 30-40, anemic is 10, Sam was at 22. Not terrible, but not where we need it. Iron levels have been directly correlated to speech development in children her age. So now we are going to add a multi-vitamin with minerals to our daily routine. YAY! Easy solution to something that could have been much larger.
We are going to see the sleep clinic neurologist at Vanderbilt in a week to talk over a sleep study and possible MRI. I am currently in the market for a weighted blanket that was recommended to help her sleep. It can also be used to help with her tantrums. The only down side is they run about $125 and of course insurance does not cover them. Oh well, sometimes you just have to bite the bullet and do what needs to be done for your little one.
Tomorrow we have our in home evaluation for ABA...can't wait to see how this will help her! I'm really excited!
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