Today we went to Vanderbilt and met with our referred neurologist. After spending time with us and getting a thorough background on Sam, she concluded that there was no sign of "silent seizures" and that a sleep study was not necessary at this time. YAY! She did ask us to start a sleep diary of the times and lengths Sam sleeps over the next several weeks. She prescribed a supplement of melatonin to start after the 1st week of diary recordings. I picked up some tonight and will have it ready to begin next week. This was a great appointment in addition as we were asked to partake in an upcoming sleep study on kids with ASD (perfect timing!). Sam will be given a "watch" to wear that will monitor when she is awake and when she is asleep. It will give us a very clear picture of her sleep patterns, and maybe a few clues as to why they are not consistent. We submitted our information to the lady in charge of the study and will wait to hear more about when it will begin.
Hubby has been home from work with us all day, and I have to say, is making great strides in handling all of this with Sam. He has really stepped things up a notch and jumped in full force. I am so thankful to have him here. He's the balance I need when I am feeling weak, and the grounding I need when I am ready to give up. He handles Sam totally different and in many ways, better than I do. She responds well to him and his involvement. We are both blessed to have him on board. So many relationships take a hit when something of this nature presents itself, and ours has struggled a little. However, I am very confident that we are in it to win it, and on the same team.
Also, thanks to a most generous soul (I won't name names for anonymity reasons), I am half way to my goal for the upcoming conference in Chicago! I cannot even begin to express how grateful and excited I am that this is materializing into a reality. So thank you, you know who you are, for your most caring gift and the encouragement to strive to further my education in whatever means I am able.
I am glad that you were able to go to this appointment. Thank God that it sounds like seizures are not the problem. Phewwww!! Also, it would be great if you could get involved in the sleep study...who knows what you might learn and who else you might help by participating. Also, Kudos to Matt for being Super Dad and Super Husband!!@
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